Skip to main content

User-Centered Design of a National Medical Registry for Tick-Borne Diseases

  • Conference paper
  • First Online:
Advances in Human Factors and Ergonomics in Healthcare and Medical Devices (AHFE 2018)

Part of the book series: Advances in Intelligent Systems and Computing ((AISC,volume 779))

Included in the following conference series:

  • 892 Accesses

Abstract

Tick-borne diseases are increasing in a global perspective, with Lyme disease and tick-borne encephalitis as the most frequent. The Norwegian National Advisory Unit on Tick-borne Diseases is preparing the development of a national medical registry for clinical follow-up of patients with tick-borne diseases based on the best practice guidelines and for research purposes. This paper presents the methodological approach of a user-centered design process applied in the initial phase of the registry development. A user workshop identified user needs, requirements and proposed a service workflow for the registry operation. As the next step, a simulation of the proposed service workflow was performed in a clinical laboratory together with end-user groups. The main contribution of this paper lies on the methodological descriptions of the user-centered design process, and how to facilitate the active contribution of end-users in a technical development process within a health care context.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Jongejan, F., Uilenberg, G.: The global importance of ticks. Parasitology 129(S1), S3–S14 (2004)

    Google Scholar 

  2. Dantas-Torres, F., Chomel, B.B., Otranto, D.: Ticks and tick-borne diseases: a one health perspective. Trends Parasitol. 28(10), 437–446 (2012)

    Article  Google Scholar 

  3. Gray, J.S., Dautel, H., Estrada-Peña, A., Kahl, O., Lindgren, E.: Effects of climate change on ticks and tick-borne diseases in Europe. Interdiscip. Perspect. Infect. Dis. (2009)

    Article  Google Scholar 

  4. Koedel, U., Fingerle, V., Pfister, H.W.: Lyme neuroborreliosis—epidemiology, diagnosis and management. Nat. Rev. Neurol. 11(8), 446 (2015)

    Article  Google Scholar 

  5. Danielová, V., Schwarzová, L., Materna, J., Daniel, M., Metelka, L., Holubová, J., Kříž, B.: Tick-borne encephalitis virus expansion to higher altitudes correlated with climate warming. Int. J. Med. Microbiol. 298, 68–72 (2008)

    Article  Google Scholar 

  6. Lindquist, L., Vapalahti, O.: Tick-borne encephalitis. Lancet 371(9627), 1861–1871 (2008)

    Article  Google Scholar 

  7. Eliassen, K.E., Berild, D., Reiso, H., Grude, N., Christophersen, K.S., Finckenhagen, C., Lindbæk, M.: Incidence and antibiotic treatment of erythema migrans in Norway 2005–2009. Ticks Tick Borne Dis. 8(1), 1–8 (2017)

    Article  Google Scholar 

  8. Wilking, H., Stark, K.: Trends in surveillance data of human lyme borreliosis from six federal states in Eastern Germany, 2009–2012. Ticks Tick Borne Dis. 5(3), 219–224 (2014)

    Article  Google Scholar 

  9. Norwegian Institute of Public Health: Report on Ticks and Tick-borne Diseases (2015). https://www.fhi.no/globalassets/dokumenterfiler/moba/pdf/flatt-og-flattbarne-sykdommer-pdf2.pdf

  10. Lindquist, L.: Tick-borne encephalitis. In: Handbook of Clinical Neurology, vol. 123, pp. 531–559. Elsevier (2014)

    Chapter  Google Scholar 

  11. Müller, I., Freitag, M.H., Poggensee, G., Scharnetzky, E., Straube, E., Schoerner, C., Norris, D.E.: Evaluating frequency, diagnostic quality, and cost of lyme borreliosis testing in Germany: a retrospective model analysis. Clin. Dev. Immunol. (2012)

    Google Scholar 

  12. Lorentzen, Å.R., Forselv, K.J., Helgeland, G., Salvesen, R.E., Sand, G., Flemmen, H.Ø., Bø, M.H., Nordaa, L., Roos, A.K., Jim, M.W., Owe, J.F., Nyquist, K.B., Schüler, S., Eikeland, R., Mygland, Å., Ljøstad, U.: Lyme neuroborreliosis: do we treat according to guidelines? J. Neurol. 264(7), 1506–1510 (2017)

    Article  Google Scholar 

  13. The Norwegian National Advisory Unit on Tick-borne Diseases. https://xn--flttsenteret-ucb.no/in-english/

  14. Goldzweig, C.L., Towfigh, A., Maglione, M., Shekelle, P.G.: Costs and benefits of health information technology: new trends from the literature. Health Aff. 28(2), w282–w293 (2009)

    Article  Google Scholar 

  15. U.S. Department of Health and Human Services: Office of the National Coordinator for Health Information Technology. https://www.healthit.gov/patients-families/basics-health-it

  16. Vredenburg, K., Mao, J., Smith, P.W., Carey, T.: A survey of user-centered design practice. In: Conference on Human Factors in Computing Systems (SIGCHI 2002), pp. 471–478 (2002)

    Google Scholar 

  17. Lazar, J.: Web Usability- a User-Centered Design Approach. Pearson Education, Boston (2006)

    Google Scholar 

  18. Nielsen, J.: Usability Engineering. Elsevier, Amsterdam (1993)

    Chapter  Google Scholar 

  19. Denzin, N.K., Lincoln, Y.S.: Handbook of Qualitative Research. SAGE Publications, Inc., Thousand Oaks (1994)

    Google Scholar 

  20. Kushniruk, A.W., Borycki, E.M.: Development of a video coding scheme for analyzing the usability and usefulness of health information systems. In: CSHI, pp. 68–73 (2015)

    Google Scholar 

  21. Svanæs, D., Alsos, O.A., Dahl, Y.: Usability testing of mobile ICT for clinical settings: methodological and practical challenges. Int. J. Med. Inf. 79(4), e24–e34 (2010)

    Article  Google Scholar 

  22. Smaradottir, B., Fensli, R.W., Boysen, E.S., Martinez, S.: Infrastructure for health care simulation: recommendations from the model for telecare alarm services project. In: The International Conference on Health Informatics and Medical systems (HIMS 2017), pp. 64–69, CSREA Press, Las Vegas (2017)

    Google Scholar 

  23. Li, A.C., Kannry, J.L., Kushniruk, A., Chrimes, D., McGinn, T.G., Edonyabo, D., Mann, D.M.: Integrating usability testing and think-aloud protocol analysis with “near-live” clinical simulations in evaluating clinical decision support. Int. J. Med. Inf. 81(11), 761–772 (2012)

    Article  Google Scholar 

  24. Borycki, E., Kushniruk, A.: Identifying and preventing technology-induced error using simulations: application of usability engineering techniques. Healthc. Q. 8(Sp) (2005)

    Article  Google Scholar 

  25. Smaradottir, B.F.: The steps of user-centered design in health information technology development: recommendations from a PhD research study. In: International Conference on Computational Science and Computational Intelligence (CSCI), pp. 116–121. IEEE (2016)

    Google Scholar 

  26. The Norwegian Centre for Research Data. http://www.nsd.uib.no/personvern/en/index.html

  27. Kushniruk, A.W., Patel, V.L.: Cognitive and usability engineering methods for the evaluation of clinical information systems. J. Biomed. Inf. 37(1), 56–76 (2004)

    Article  Google Scholar 

  28. Jaspers, M.A.: Comparison of usability methods for testing interactive health technologies: methodological aspects and empirical evidence. Int. J. Med. Inf. 78(5), 340–353 (2009)

    Article  Google Scholar 

  29. Ritter, F.E., Baxter, G.D., Churchill, E.F.: Foundations for Designing User-Centered Systems. Springer, London (2014)

    Book  Google Scholar 

  30. Regional Research Fund Agder. http://www.regionaleforskningsfond.no/prognett-rff-hovedside/RFF_in_English/1253976860326

Download references

Acknowledgments

The authors thank the participants of the study for their disinterested contribution. Special thanks to Åsmund Rodvig Somdal for technical support and assistance in the laboratory simulations. Financial support was provided by the Regional Research Fund of Agder [30] in Norway with Grant number 272978.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Berglind Fjola Smaradottir .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer International Publishing AG, part of Springer Nature

About this paper

Check for updates. Verify currency and authenticity via CrossMark

Cite this paper

Smaradottir, B.F., Eikeland, R., Reiso, H., Fensli, R.W. (2019). User-Centered Design of a National Medical Registry for Tick-Borne Diseases. In: Lightner, N. (eds) Advances in Human Factors and Ergonomics in Healthcare and Medical Devices. AHFE 2018. Advances in Intelligent Systems and Computing, vol 779. Springer, Cham. https://doi.org/10.1007/978-3-319-94373-2_11

Download citation

Publish with us

Policies and ethics