Abstract
An indigenous perspective of palliative care is not commonly known. The aim of this chapter is to describe key caregiving strengths of New Zealand Māori whānau (family) to illustrate how they draw on their cultural customs at end of life. Cultural customs are informed by knowledge passed down from tūpuna (ancestors) and the relationship with the whenua (land). End of life cultural care customs ensure the highest quality of care is provided to the ill and dying person and their bereaved whānau. Whānau are critical “pou aroha” (care stalwarts); they carry out the bulk of end of life care. Whānau ensure the best physical, emotional/mental, and spiritual care is received before the person dies, no matter what healthcare setting they are in. A holistic healthcare approach is required at this time as this supports whānau cultural aspirations to prepare the person’s spirit to pass through the ārai (veil) as they transition from the physical realm to the metaphysical realm at time of death. The chapter highlights the need for care that is genuinely holistic and relational as this is most likely to meet the needs of indigenous peoples. The facilitators and barriers associated with providing care are discussed within the context of a set of complex end of life circumstances. Barriers include health inequities, racism, poor access to palliative care and statutory (government) support, inadequate information, and poor communication. Whānau carers often experience high levels of stress and have too few informal family carers to share the care responsibility and the high financial costs associated with end of life care (Gott et al., Palliat Med 29:518–528, 2015a). However, the values of aroha (compassion, empathy, concern), whanaungatanga (relationships and connections), manaakitanga (caring for the mana (status, prestige, authority)) of the dying, kotahitanga (collective decision-making processes), and wairuatanga (spirituality) are introduced as guiding forces that protect and strengthen whānau carers.
References
Angelo J, Wilson L. Exploring occupational roles of hospice family caregivers from Māori, Chinese and Tongan ethnic backgrounds living in New Zealand. Occup Ther Int. 2014;21(2):81–90.
Associate Minister of Health. Healthy aging strategy. Wellington: Ministry of Health; 2016.
Beaglehole E, Beaglehole P. Contemporary Maori death customs. J Polyn Soc. 1945;54(2):91–116.
Best E. The Maori as he was: a brief account of Maori life as it was in pre-European days. Wellington: Dominion Museum; 1934.
Brown W. New Zealand and its Aborigines. London: J. & D.A. Darling; 1851.
Clark D. Between hope and acceptance: the medicalisation of dying. BMJ. 2002;324(7342):905–7.
Dein S. Culture and cancer care: anthropological insights in oncology. Maidenhead: Open University Press; 2006.
Dembinsky M. Exploring Yamatji perceptions and use of palliative care: an ethnographic study. Int J Palliat Nurs. 2014;20(8):387–93.
Dieffenbach E. Travels in New Zealand: with contributions to the geography, botany, and natural history of that country, vol. 2. London: John Murray; 1843.
Duggleby W, et al. Indigenous people’s experiences at the end of life. Palliat Support Care. 2015;13:1721–33.
Durie M. Whaiora: Māori health development. Auckland: Oxford University Press; 1994.
Durie M. Whaiora: Māori health development. 2nd ed. Auckland: Oxford University Press; 1998, viii, 244.
Dyall L, et al. Pinnacle of life – Māori living to advanced age. N Z Med J. 2011;124(1331):1–12.
Frey R, et al. ‘Where do I go from here’? A cultural perspective on challenges to the use of hospice services’. Health Soc Care Community. 2013;21(5):519–29.
Gott M, Williams L, Moeke-Maxwell T. The paradoxes of ‘home’ within a palliative care context. In: Roche M, et al., editors. Engaging geographies: landscapes, lifecourses and mobilities. Cambridge: Cambridge University Press; 2014. p. 137–51.
Gott M, et al. ‘No matter what the cost’: a qualitative study of the financial costs faced by family and whānau caregivers within a palliative care context. Palliat Med. 2015a;29(6):518–28.
Gott M, et al. Te Pakeketanga: living and dying in advanced age – a study protocol. BMC Palliat Care. 2015b;14(74):21.
Gott M, et al. End of life care preferences among people of advanced age: LiLACS NZ. BMC Palliat Care. 2017;16(1):19.
Gott M, et al. What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers. Palliat Med. 2018;32(1):268–75.
Hampton M, et al. Completing the circle: elders speak about end-of-life care with aboriginal families in Canada. J Palliat Care. 2010;26(1):6–14.
Harris R, et al. Racism and health: the relationship between experience of racial discrimination and health in New Zealand. Soc Sci Med. 2006;63:1428–11.
Hiroa TR. The coming of the Maori. Wellington: Thomas Avery & Sons; 1950.
Johnston Taylor E, et al. Māori perspectives on hospice care. Divers Equity Health Care. 2014;11:61–71.
Jones C. Levels of racism: A theoretic framework and a gardener’s tale. Am J Public Health. 2000;90(8):1212–5.
Jones R. Rongoā – medicinal use of plants – the impact of colonisation. In: Te Ara – the encyclopedia of New Zealand. New Zealand: New Zealand Government; 2012.
Kelly L, et al. Palliative care of First Nations people: a qualitative study of bereaved family members.[Erratum appears in Can Fam Physician. 2009 Jun;55(6):590 Note: Gilles, Chris [corrected to Giles, Chris]]. Can Fam Physician. 2009;55(4):394–5.
Kidd J, et al. Kia mau te kahu whakamaru: health literacy in palliative care. Wellington: Ministry of Health; 2014.
Koti DM. Te Tatau o te Pō: perceptions and experiences of palliative care and hospice – a Māori perspective. Massey University: Manawatū Campus, New Zealand; 2013.
Lange R. Story: Te hauora Māori i mua – history of Māori health – re-European health. In: Te Ara – the Encyclopedia of New Zealand. New Zealand: New Zealand Government; 2011.
Laurenson R, et al. Palliative care patients use of emergency departments. N Z Med J. 2013;126(1372):80–8.
McGrath P, Holewa H. The living model: a resource manual for indigenous palliative care service delivery. Toowong: Researchman; 2006.
McLeod H. The need for palliative care in New Zealand. Technical report prepared for the Ministry of Health. Wellington: Ministry of Health; 2016.
Mcleod R, et al. Foundations of spiritual care professional development programme: evaluation report. Wellington: Hospice New Zealand; 2015.
Mead SM. Tikanga Māori: living by Māori values. Wellington: Huia; 2003 x, 398.
Ministry of Health. The New Zealand palliative care strategy. Wellington: Ministry of Health; 2001.
Moeke-Maxwell T, Nikora LW. Homedeathscapes: Māori end-of-life decision-making processes. In: Kepa M, McPherson M, Manu’atu L, editors. Home: here to stay. Wellington: Huia; 2015.
Moeke-Maxwell T, Nikora LW, Te Awekotuku N. Manaakitanga: ethical research with Māori who are dying. In: Agee M, et al., editors. Pacific identities and well-being – cross-cultural perspectives. London: Routledge; 2013. p. 188–203.
Moeke-Maxwell T, Nikora LW, Te Awekotuku N. End-of-life care and Māori Whānau resilience. Mai J. 2014;3(2):140–52.
National Advisory Committee on Health and Disability. The social, cultural and economic determinants of health in New Zealand: action to improve health. Wellington: National Advisory Committee on Health and Disability; 1998.
Ngata AT. Report of Young Maori conference. Auckland: Auckland University College; 1939.
Ngata P. Death, dying and grief. In: Schwass M, editor. Last words: approaches to death in New Zealand’s cultures and faiths. Wellington: Bridgett Williams Books with the Funeral Directors Association of New Zealand; 2005. p. 29–41.
Nikora LW, Te Awekotuku N. Tangihanga: the ultimate form of Māori cultural expression – an overview of a research program. In: Agee M, et al., editors. Pacific identities and well-being. Cross-cultural perspectives. New York: Routledge; 2013. p. 169–73.
O’Brien V. Person-centred palliative care: a First Nations perspective. Hamilton, Ontario: McMaster University; 2012.
Oetzel J, et al. Differences in ideal communication behaviours during end-of-life care for Māori carers/patients and palliative care workers. Palliat Med. 2015a;29(8):764–6.
Oetzel J, et al. Managing communication tensions and challenges during the end-of-life journey: perspectives of Māori kaumātua and their whānau. Health Commun. 2015b;30(4):350–60.
Oppenheim RS. Maori death customs. Wellington: A.H. & A.W. Reed Ltd.; 1973.
Palliative Care Subcommittee. New Zealand palliative care: a working definition. Wellington: NZ Cancer Treatment Working Party; 2007.
Pascoe EA, Smart Richman L. Perceived discrimination and health: a meta-analytic review. Psychol Bull. 2009;135(4):531–54.
Penney L, Fieldhouse W, Kerr S. Te Hononga a Te Hekenga o Te Rā: connections at the going down of the sun: improving Māori access to palliative care/tapuhi hunga roku in Te Tai Tokerau. Kerikeri: Kiwikiwi Research and Evaluation; 2009.
Phillipps WJ. European influences on tapu and the tangi. J Polyn Soc. 1954;63(3):147–63.
Polack JS. Manners and customs of the New Zealanders: with notes corroborative of their habits, usages, etc., and remarks to intending emigrants, with numerous cuts drawn on wood, vol. 2. London: J. Madden & Company; 1840.
Reed AW. An illustrated encyclopedia of Māori life. Wellington: A.H. & A.W. Reed Ltd.; 1963.
Reid P. Contemporary perspectives. In: Schwass M, editor. Last words: approaches to death in New Zealand’s cultures and faiths. Wellington: Bridgett Williams Books with the Funeral Directors Association of New Zealand; 2005. p. 41–9.
Reid P. Good governance: the case of health equity. In: Tawhai V, Gray-Sharp K, editors. “Always speaking”: the Treaty of Waitangi and public policy. Wellington: Huia; 2011.
Reid P, Robson B. Understanding health inequalities. In: Robson B, Harris J, editors. Hauora Māori standards of health IV. Wellington: Te Rōpu Rangahau Hauora a Eru Pomare; 2007.
Slater T, et al. Exploring Māori cancer patients’, their families’, community and hospice views of hospice care. Int J Palliat Nurs. 2015;21(9):439–45.
Statistics New Zealand. How is our Māori population changing? 2015. http://archive.stats.govt.nz/browse_for_stats/people_and_communities/maori/maori-population-article-2015.aspx. Accessed
Statistics New Zealand. Ethnic population projections to grow across New Zealand. 2017. https://www.stats.govt.nz/news/ethnic-populations-projected-to-grow-across-new-zealand. Accessed
Tregear E. The Maoris of New Zealand. J Anthropol Inst G B Irel. 1890;19:96–123.
Walker R. Ka whawhai tonu matou: struggle without end. Auckland: Penguin Books; 1990.
World Health Organisation. National cancer control programmes: policies and managerial guidelines. 2nd ed. Geneva: World Health Organisation; 2002.
Hospice New Zealand. Hospice New Zealand standards for palliative care. Wellington: Hospice New Zealand; 2012.
Moeke-Maxwell T, Nikora LW. Wairua manuake: Māori end of life preferences. Forthcoming 2018.
Moeke-Maxwell T, Nikora LW. Wairua manuake: flight of the wairua: Māori end of life preparations. Forthcoming 2018.
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Moeke-Maxwell, T., Mason, K., Toohey, F., Dudley, J. (2018). Pou Aroha: An Indigenous Perspective of Māori Palliative Care, Aotearoa New Zealand. In: MacLeod, R., Van den Block, L. (eds) Textbook of Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-319-31738-0_121-1
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