Abstract
This article examines a case study of Spiritual Accompaniment Training in Pediatric Palliative Care (PCC) at the Sant Joan de Déu (SJD) Hospital in Barcelona, Spain. It describes the current level of training of PCC professionals in Spain and suggests action proposals to improve it. More specifically, the present study explores the challenges, needs, and gaps in the training of the health care professionals who provide pediatric palliative care and grief support in Spain. Furthermore, it investigates the skills and competences needed by pediatric health professionals in spiritual accompaniment care for both patients and their families by trying to specify the degree of spiritual competence. Finally, we propose a structured specialized training in spiritual care for PPC professionals which is based on a standardized Spiritual Accompaniment in Pediatric Palliative Care Training Program Care in Spain.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Direcció General d’Afers Religiosos (DGAR): Guia per al respecte a la diversitat de creences als centres sanitaris de Catalunya. Col.lecció “Guies sobre la diversitat Religiosa”. Generalitat de Catalunya, Barcelona (2015)
Hexem, K., Cynthia, J., Mollen, M.D., Carroll, K., Lanctot, D.: How parents of children receiving pediatric palliative care use religion, spirituality or life philosophy in tough times. J. Palliat. Med. 14(1), 39–44 (2011)
Joint Commision Resources: Advancing effective communication, cultural competence, and patient-and family-centered care: a roadmap for hospitals (2010)
Kumar, S.P.: Reporting of pediatric palliative care: a systematic review and quantitative analysis of research publications in palliative care journals. Indian J. Palliat. Care 17(3), 202–209 (2011)
Gijsberts, M.H.E., Liefbroer, A.I., Otten, R., Olsman, E.: Spiritual care in palliative care: a systematic review of the recent European literature. Med. Sci. 7(2), 25 (2019)
Miquel, P.: Sin ruido: un lenguaje para el cuidado espiritual. In: Amo, R. (ed.) Bioética y Cáncer, pp. 169–178. Universidad Pontificia de Comillas, Madrid (2020)
Paal, P., Helo, Y., Frick, E.: Spiritual care training provided to healthcare professionals: a sytematic review. J. Pastoral Care Counsel. 69(1), 19–30 (2015)
Sánchez, M.S., Bimbaum, N.C., Gutierrez, J.B., Bofill, C.G., Mora-Figueroa, P.B., Oliver, E.B.: Cómo percibimos los profesionales el acompañamiento espiritual en los equipos de Cuidados Paliativos en España. Medicina Paliativa 23(2), 63–71 (2016)
Puchalski, C., et al.: Improving the quality of spiritual care as a dimension of palliative care: the report of the consensus conference. J. Palliat. Med. 12(10), 885–904 (2009)
Puchalski, C., Jafari, N., Buller, H., Haythorn, T., Jacobs, C., Ferrell, B.: Interprofessional spiritual care education curriculum: a milestone toward the provision of spiritual care. J. Palliat. Med. 23(6), 777–784 (2020)
Partain, D., Ingram, C., Strand, J.: Providing appropriate end-of-life care to religious and ethnic minorities. Mayo Clin. Proced. 92(1), 147–152 (2017)
Direcció General de Planificació en Salut del Departament de Salut: Model organitzatiu d’atenció integral a la población infantil i juvenil amb necessitats pal.liatives i en situación de final de vida. Generalitat de Catalunya, Barcelona (2020)
Acknowledgments
The authors are grateful to Birmingham’s Children’s Hospital for this training. They thank all PEDPAL and Sant Joan de Déu (SJD) Hospital professionals and participants that made this article possible.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2021 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this paper
Cite this paper
Popescu, F., Ciccorossi, M.G., Svoboda, I.F., Diego, P.M. (2021). Spiritual Accompaniment Training in Pediatric Palliative Care: A Case Study from Spain. In: Nazir, S., Ahram, T.Z., Karwowski, W. (eds) Advances in Human Factors in Training, Education, and Learning Sciences. AHFE 2021. Lecture Notes in Networks and Systems, vol 269. Springer, Cham. https://doi.org/10.1007/978-3-030-80000-0_7
Download citation
DOI: https://doi.org/10.1007/978-3-030-80000-0_7
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-79999-1
Online ISBN: 978-3-030-80000-0
eBook Packages: Intelligent Technologies and RoboticsIntelligent Technologies and Robotics (R0)